Archive for the 'Stories' Category

PA Direct Care Worker Raises the Profile of Uninsured

In October, the Philadelphia Inquirer covered the story of Karen Goroncy, a direct care worker who goes without health care coverage as she cares for those who need her help.  In a follow up story last week, the Inquirer reported that a generous reader has offered to cover Karen’s costs of health insurance so that she can get the surgery she needs. Continue reading ‘PA Direct Care Worker Raises the Profile of Uninsured’

Caught In the Gap without Health Coverage

I am my husband’s caregiver.   He suffered from a debilitating stroke 10 years ago when he was 61 years old.  My full time job is to take care of my husband, and because of the failing economy, the state’s ability to pay my wages is now in jeopardy.  What I get from the state pays for my bills, and leaves little extra for anything else.

I have Ladies First. Ladies First is a state program that covers mammograms at a discounted price, on an annual basis. I qualify for that because of my income, and because I don’t have any other health insurance. Continue reading ‘Caught In the Gap without Health Coverage’

Increasing Medicaid Reimbursement Rates Can Lead to Health Care Coverage

I have worked in long-term care for 15 years as a nurse aide, RN Supervisor and currently as a Nursing Training and Education Coordinator.  In my current position, obtaining and retaining nurse aids as employees is my biggest challenge. Continue reading ‘Increasing Medicaid Reimbursement Rates Can Lead to Health Care Coverage’

We Need More Angels in Disguise

I have been a RN supervisor at a long term care facility for which I have worked for 17 years.  I am currently taking classes for RN to MSN with the hopes of finally reaching my goal of becoming a nurse practitioner.  I have watched many changes over the last 17 years in the healthcare field; some good and unfortunately some bad. Continue reading ‘We Need More Angels in Disguise’

Leaving a Job I Love Because I Need Health Coverage

I lost my health insurance when I decided to enter my current position as a home-health aide. I have been working in the home-health field for about two years now, yet I do not have any health coverage for myself. Unfortunately in this line of work, my wages are low and it is not possible to afford private coverage. I knew I was taking a chance but there are so many elders and disabled out there who need assistance. Continue reading ‘Leaving a Job I Love Because I Need Health Coverage’

Story: A Caregiver Is Denied Medical Care

An October 6, 2008 story from The Philadelphia Inquirer examines the challenges faced by a Pennsylvania home health aide who lacks health coverage. Read a snippet below and then follow the link to the full article: Continue reading ‘Story: A Caregiver Is Denied Medical Care’

Living With the Threat of Cancer

A testimonial by Helen Hanson, a home care worker in Maine.

I am Helen Hanson, a direct-care worker with Home Care for Maine. I have been working at my home care job for five years. I help keep elderly folk living in their homes. I help them with grocery shopping, taking them to medical appointments, to the bank, getting errands done. I help them keep their homes clean and tidy. I also help them with personal care like bathing and dressing.

They look forward to my visits every week. I look forward to seeing them too. I enjoy their company and I enjoy this job. Continue reading ‘Living With the Threat of Cancer’

A Daughter’s Sacrifice

Mai Duong, 53, came to the United States from Vietnam 18 years ago. Soon after she arrived, she started working in a gift shop. Then her mother suffered a stroke that left her housebound and Mai left her job to become her mother’s caretaker, in accordance with Vietnamese tradition.

After leaving her job, Mai was eligible for some cash benefits and health coverage through Pennsylvania’s welfare system. For over ten years, mother and daughter lived quietly on subsistence in a one-floor apartment on Old York Road. Mai helps her mother with daily activities like bathing, prepares her meals, and takes her to her many doctors’ appointments. She also collaborates with her mother’s doctors on things like coordinating her mother’s pacemaker with the telephone so her doctors can monitor her health via the Internet. Continue reading ‘A Daughter’s Sacrifice’

Impoverished by Out-Of-Pocket Expenses

BrendaA testimonial by Brenda N., a hospice nurse aide in Pennsylvania:

I have health insurance; I wouldn’t work for anyplace that didn’t offer it. But my out-of pocket costs are very, very high and rising. I contribute $65 every two weeks, plus $20 co-pays, a percentage of prescriptions, and a yearly deductible of $400. All of these costs are about to go up, but my pay isn’t going up.

My hourly rate is $12 per hour, but after my health insurance expenses, I’m at the poverty level. After I pay my bills, I have only five to ten dollars left per month. I have to work a second job to make ends meet.

Turnover Makes Care Difficult

Renzo and CherylA testimonial by Cheryl D., a home care consumer in Pennsylvania:

At the age of 14, a cardiac arrest left my son Renzo with a severe anoxic brain injury. For the last seven years, he has been completely dependent on the help of direct-care workers. I pay at the higher end of the wage scale ($10.50 - $15 per hour), but I can’t afford health benefits for his workers. Continue reading ‘Turnover Makes Care Difficult’

Often Short-Staffed Because of High Turnover

Lori MichaelA testimonial by Lori M., a home care agency executive director from Pennsylvania:

The first time I tried offering health insurance to retain some of our workers, it didn’t work.

We went through a cafeteria style policy. The price depended on age, medical condition and what they chose to have as coverage. I don’t know what coverage they took. I paid $1.15 of the premiums cost for every hour worked per month, plus the $120 sign-up fee. Continue reading ‘Often Short-Staffed Because of High Turnover’

Help Me Retain Workers

Joan DonahueA testimonial by Joan D., a home care agency owner in Maine:

I know that providing health insurance would help me retain workers. One of my full-time aides who needed coverage prompted my search for insurance by letting me know she would have to seek employment elsewhere if I was unable to offer it in the near future.

The instability of hours is the biggest challenge for direct care workers: if I don’t have work for them, I can’t afford to pay their health insurance. What we really need in this industry is to make health benefits portable, so they can move with them as they move from agency to agency.

I Can’t Afford to Get the Care I Need

TinaA testimonial from Tina, a home care worker in Maine:

My name is Tina, and I provide home based care for Eunice from 10 at night until 7 in the morning. Then, from 8 in the morning to 1 in the afternoon I go to my other job at a developmental disability agency in town. Continue reading ‘I Can’t Afford to Get the Care I Need’

Worries About Losing Her Caregivers

Eunice SpoonerA testimonial by Eunice Spooner, a home care consumer in Sidney, Maine:

My name is Eunice Spooner, I’m a member of First Congregational Church in Waterville, and I live in Sidney. I was a school teacher until a car crash left me a quadriplegic and confined to a wheelchair over 20 years ago. Since then, I have had many blessings in my life – wonderful family, friends, and caregivers, the chance to be a deacon at church, a volunteer at the Atwood Elementary School, and a member of the SAD #47 School Board. Still, the fact is that I cannot get through my day without a lot of assistance throughout the day, from getting up, doing light housework, driving to appointments, going me to bed and even using the bathroom. Continue reading ‘Worries About Losing Her Caregivers’

Health Problems Kept Me Away From Work

A testimonial from Iya’Negra L., a certified nursing assistant in Maine:

Iya’Negra L.I am a certified nurse aide who has worked in several different nursing homes. In 2004, I had health insurance coverage for six months, which covered my three girls and me. It cost $174 per pay period, but this became too expensive for me. After rent and all of the other basic household expenses I wasn’t making ends meet. So I dropped the health insurance. Continue reading ‘Health Problems Kept Me Away From Work’

I Can’t Afford To Cover My Workers

Karen BasileA testimonial from Karen B., a home care agency manager in Michigan:

I am a manager for a home-care agency with between 150 and 200 employees. I feel caught between a rock and a hard spot because I have so many employees and so little profit margin. There is no way I can afford to offer health benefits. It’s a horrible place to be in. If anybody in my family were to get sick, we have insurance, but my workers don’t. Continue reading ‘I Can’t Afford To Cover My Workers’

7 Years. 300 Direct-Care Workers.

Eric ThomasA testimonial from Eric T., a home care consumer in Michigan:

I’ve had over 300 direct-care workers in the last seven years. None of them have had health insurance from their work. They may have had it through their spouse, but this was very few of them.

I’ve had a couple workers for five to seven years, but mostly they stay around 18 months. Sometimes I only see a worker one time and then they (the agency) send a different person the next day. I get fill-in staff a lot.

I think workers would stay longer in the job if they had health insurance. It would mean less stress for them, it would make them believe in their job more and help them get something out of it. My workers do a lot of lifting and other physical work. The heavy work they put in now will catch up with their bodies in the future. They need to have a healthy life and be able to take care of their families.

They’re taking care of people who get care through Medicaid but they can’t get insurance themselves. The state’s Medicaid dollars are used to take care of people who need long-term care, so the same funds should be used to cover the workers providing the care.

Medical Bills Resulted in Bankruptcy

Cindy RamerThe following testimony was given by certified nursing assistant Cindy R. at a press conference held at the Iowa state capitol in January 2005. She added the postscript ten months later, after her husband passed away.

Good morning all! I’m a direct-care worker and a member of the Iowa Caregiver’s Advisory Council. I have come here this morning to educate and be educated, so that we can all work together to improve the health care system for the direct-care workers and those that they assist or care for. Continue reading ‘Medical Bills Resulted in Bankruptcy’